Registry Updates

Get information on the latest registry-related news, including ongoing efforts to advance research and increase the quality of life of people living with SADS conditions.

Resources

Find a host of resources to support you and your family members living with SADS conditions. Access information on diagnosis and treatment, connect with online support resources, and more.

Professionals

Researchers, clinicians and other professionals can access de-identified aggregate data in this patient-driven registry to identify target populations for trial/study planning or recruitment. Professionals can also contact the SADS Foundation to communicate with SIRCh registrants on your behalf regarding potential candidacy for clinical trials and research studies. 

Register as a Professional to get started.

Explore the Data

Remember, this is your registry and you’re in charge of the information in it. Check out how to explore the information you and others have provided to learn more about SADS conditions. Log into your account today and start exploring the data.